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Leeds Multisystem Rehabilitation Service (LeMuRS)

Helping you live well with long term health conditions

About the multisystem rehabilitation service

We support adults aged 16+ living with long term, multisystem conditions that affect daily life. These are conditions which typically cause widespread body symptoms.

Who we are

We have a multi-disciplinary team including physiotherapists, occupational therapists, dieticians, psychological therapists, and rehabilitation assistants

We can also seek advice from specialist doctors in cardiology, respiratory medicine and rehabilitation medicine to ensure your care is safe and appropriate

What we do

Our focus is on rehabilitation and self-management, helping you live better with your symptoms, rather than pursuing further tests or medical cures.

We aim to help you understand your condition, regain confidence and live life as fully as possible.

Our approach

We offer a mixture of virtual programmes online as well as 1-to-1 appointments. These can be completed either face to face, via telephone calls, or virtually online. In some cases we may be able to offer home visits for housebound patients.

Once accepted onto our service you will be invited to a weekly webinar that offers advice for multiple different symptoms across a 7 week programme.

Who can benefit?

We may be suitable for you if you have:

a condition such as Long Covid or another post infectious condition, connective tissue disease causing multiple symptoms, or multiple problems after severe illness
several conditions causing combined effects, for example, hypermobility limiting walking, migraines interfering with daily life and IBS causing pain
ongoing symptoms despite good medical care, for example, severe fatigue with treated inflammatory arthritis.

Referrals

Referral can come from primary or secondary care. In either case referral should follow a comprehensive medical assessment, with diagnoses made and investigations completed. LeMuRS is a rehabilitation service. It would not be acceptable for a secondary care specialty to redirect referrals to LeMuRS without first making their own medical assessment.

We do not accept self referrals, unless you have been previously known to the Long Covid Rehabilitation service or LeMuRS then you are able to self re-refer via email or phone.

To make a referral, please use the Leeds Multisystem Rehabilitation Service (LeMuRS) referral form

All referrals are to be sent via SPUR at lcht.gateway.leeds@nhs.net

Attending your appointment

Help to access and attend your appointment

Patient Information

Once we accept your referral, you will be sent an opt in letter requiring you to call the team. We will then ask you to complete questionnaires via an app (paper copies available on request) as soon as possible as this is used to help us better understand your symptoms and establish how the team can support you.

First appointments

Once you have completed the questionnaires, you will be offered an appointment at one of our clinics in Leeds (Chapeltown, Seacroft, Armley, Parkside and Yeadon) in which a set of observations and measures are taken (for example, blood pressure, heart rate, oxygen levels)

You will then be offered a virtual assessment, either within a group on MS Teams or as a 1 to 1 on the telephone. We will discuss your symptoms and the main problems you are experiencing as a result.

7 Week virtual course

Following this assessment, you will be invited to join a 7-week virtual symptom management programme. This provides both an education component and rehabilitation strategies for common symptoms, plus an opportunity to discuss your symptoms with other people with similar conditions.

After completing this programme, we will need you to complete the questionnaires again and you will be seen in clinic by a therapist for ongoing rehabilitation.

Interested in knowing more about the Leeds Multisystem Rehabilitation Service? Do you have ideas on how the service could be improved? Do you want to be involved with ongoing research?

What’s involved?

Help us improve the service.
Take part in surveys.
Help us develop communication and information for people with long term health conditions and their carers or families.
Help us review service letters and leaflets.

Why should you get involved?

Receive updates on research, meet and hear from other people with long term health conditions and receive newsletters and updates from us
Opportunity to share your experiences, be involved with service improvement and research projects.
Help shape the future of the service!

Be involved where you can, when you can

Ask a member of the team or email lcht.multisystemrehab.research@nhs.net stating PCPI group.

Support for mental wellbeing

Leeds mental wellbeing service (LCH)
Mindwell(Contact phone number: 0113 843 4388

Free, confidential, impartial advice and support on a whole range of welfare benefits

Leeds welfare rights
Leeds welfare rights phone number: 0113 376 0452

Citizens Advice to assist people with legal, debt, consumer, housing and other problems

Leeds Citizen’s Advice
Leeds Citizen’s Advice Contact: 08082 787878

Support for carers

If you have caring responsibilities for a family member/friend, such as helping with finances, personal care and domestic tasks, we appreciate that this can be stressful at times. If you, or someone who is caring for you, would like some information or support please contact: