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Down syndrome: Resources and information
Find resources and information on Down syndrome
Local Authority resources
Leeds City Council resources
Leeds City Council have produced a number of One Minute Guides (OMG) to their services. Some of the most relevant are listed here, or visit the Leeds one minute guides for a full list.
- Portage leaflet
- Children and Families Act or Education Health and Care Plan (EHCP)
- Cluster working
- Leeds Local Offer
- Early help
- Early start service
- Early years funding for inclusion (EYFFI)
- Free early education entitlement (FEEE)
- School admissions
- Special educational needs and disabilities information and support service (SENDIASS)
- Special Educational Needs and Inclusion team (SENIT)
- Short breaks and fun activities
- Supporting pupils at school with medical conditions
Information for children and families
- Children and families | Leeds.gov.uk
- Phone: 0113 247 4386
Leeds Local Offer
Changing Places
Local support groups
Sunshine and Smiles
- Sunshine and Smilles website
- Phone: 07725 041 601
- Email: hello@sunshineandsmiles.org.uk
Hawthorn Family Support Centre (Mencap)
- Address: The Vinery Centre, 20 Vinery Terrace, Leeds, LS9 9LU
- Hawthorn Family Support Centre website
- Phone: 0113 235 1331
- Email: info@leedsmencap.org.uk
Bradford Down Syndrome Training and Support Service Limited
- Bradford Down Syndrome website
- Phone: 01274 561 308
- Email: office@downsyndromebradford.co.uk
Wakefield and District Down Syndrome Support Group
- Wakefield Down Syndrome website
- Phone: 07814 367 594
- Email: info@downsyndrome-wakefield.co.uk
Special Needs and Parent Support (SNAPS)
- Special Needs and Parent Support website
- Phone: 07738 287024
- Email: jo@snapsyorkshire.org
The Down’s Syndrome Association (DSA) have produced a number of parent information leaflets which can be found on their website
The Down Syndrome Medical Interest Group (DSMIG) UK have a useful information and resource section on their website for further information on health surveillance and health issues.
Some families may be entitled to claim certain benefits. Further information is available on the GOV.UK website. Your health visitor will be able to support you to look at what is right for you.
Family information
Leeds SEND Information Advice Support service (SENDIASS)
- Address: Technorth, 9 Harrogate Road, Chapel Allerton, Leeds, LS7 3NB
- Leeds Council website
- Helpline: 0113 378 5020 (open on Monday to Friday from 10am to 3pm)
Leeds City Council Inclusive Sport Programme
- Active Leeds website then look for the ‘Disability Sports’ section
- Phone: 0113 378 8001
- Email: ActiveLeeds@leeds.gov.uk
