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/Our services (A to Z)/Integrated children’s additional needs/Children with Down syndrome/Resources and information
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Down's syndrome: Resources and information

Find resources and information on Down syndrome

Man and child using a tablet.

Also in Children with Down syndrome

  • Equipment for everyday life: Children with Down syndrome
  • Introduction to the Parents’ Guide
  • People you may meet
  • Physiotherapy: Information for children with Down syndrome
  • What can you expect to happen before you leave hospital?

Local Authority resources

Leeds City Council have produced a number of One Minute Guides (OMG) to their services. Some of the most relevant are listed here, or visit the Leeds one minute guides for a full list.

  • Portage leaflet
  • Children and Family Act or Education Health and Care Plan (EHCP)
  • SCOPE cluster working
  • SCOPE sleep right
  • Leeds Local Offer
  • Early help
  • Early start service
  • Early years funding for inclusion (EYFFI)
  • Free early education entitlement (FEEE)
  • Safe sleeping
  • School admissions
  • Special educational needs and disabilities information and support service (SEND IASS)
  • Special Educational Needs and Inclusion team (SENIT)
  • Short breaks
  • Supporting pupils at school with medical conditions
  • Third sector

Local support groups

Sunshine and Smiles

  • Sunshine and Smilles website
  • Phone: 07725 041 601
  • Email: hello@sunshineandsmiles.org.uk

Hawthorn Family Support Centre (Mencap)

  • Address: The Vinery Centre, 20 Vinery Terrace, Leeds, LS9 9LU
  • Hawthorn Family Support Centre website
  • Phone: 0113 235 1331
  • Email: kath.surtees@leedsmencap.org.uk

Bradford Down Syndrome Training and Support Service Limited

  • Bradford Down Syndrome website
  • Call Wendy Uttley on 01274 561 308
  • Email: office@downsyndromebradford.co.uk

Wakefield and District Down Syndrome Support Group

  • Wakefield Down Syndrome website
  • Phone: 07814 367 594
  • Email: info@downsyndrome-wakefield.co.uk

Special Needs and Parent Support (SNAPS)

  • Special Needs and Parent Support website
  • Phone: 07964 847 775

Penny Field site

  • Email:dean@snapsyorkshire.org
  • Phone: 07964 847 775

Broomfield site

  • jo@snapsyorkshire.org
  • Phone: 07738 287 024

The Down’s Syndrome Association (DSA) have produced a number of parent information leaflets which can be found on their website

  • Down syndrome: Pregnancy and baby
  • Down syndrome: Parents and family carers wellbeing

The Down Syndrome Medical Interest Group (DSMIG) UK have a useful information and resource section on their website for further information on health surveillance and health issues.

Some families may be entitled to claim certain benefits. Further information is available on the GOV.UK website. Your health visitor will be able to support you to look at what is right for you.

Family information

The Family Information service

  • The Family Information service website
  • Phone: 0113 247 4386

Leeds SEND Information Advice Support service

  • Address: Technorth, 9 Harrogate Road, Chapel Allerton, Leeds, LS7 3NB
  • Leeds Council website
  • Helpline: 0113 378 5020 (open on Monday to Friday from 10am to 3pm)

Leeds Local Offer

On the Leeds Council website search for ‘local offer’

Leeds City Council Inclusive Sport Programme

  • Active Leeds website then look for the ‘Disability Sports’ section
  • Phone: 0113 378 8001
  • Email: ActiveLeeds@leeds.gov.uk

Changing Places

On the Leeds Council website search for ‘changing places’

National resources

  • Down’s Syndrome Association
  • Down’s Heart Group
  • Down Syndrome Educational Trust
  • Babywalkers leaflet produced by Bliss: The Premature Baby Society  (search for ‘babywalkers’)
  • Contact a Family
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