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/Our Services (A-Z)/Integrated Children’s Additional Needs Service/Children with Down syndrome/Resources and Information
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Down's Syndrome - Resources and Information

Find resources and information below

Man and child using a tablet.

Also in Children with Down syndrome

  • Equipment for Everyday Life – Children with Down syndrome
  • Introduction to the Parents’ Guide
  • People you may meet
  • Physiotherapy – Information for children with Down Syndrome
  • What can you expect to happen before you leave hospital?

Local Authority resources

Leeds City Council have produced a number of One Minute Guides (OMG) to their services. Some of the most relevant are listed here, or visit https://www.leeds.gov.uk/one-minute-guides for a full list.

  • Portage leaflet https://www.portage.org.uk/barnardos-leeds-portage-service
  • Children and Family Act / Education Health and Care Plan (EHCP)
  • SCOPE Cluster Working
  • SCOPE Sleep right https://www.scope.org.uk/family-services/
  • Leeds Local Offer
  • Early Help
  • Early Start Service
  • EYFFI (Early Years Funding For Inclusion)
  • FEEE (Free Early Education Entitlement)
  • Safe Sleeping
  • School Admissions
  • SEND IASS (Special Educational Needs and Disabilities Information and Support Service)
  • SENIT (Special Educational Needs and Inclusion Team)
  • Short Breaks
  • Supporting Pupils at School with Medical Conditions
  • Third Sector

Local Support Groups

Sunshine and Smiles

https://sunshineandsmiles.org.uk/

 

Mob: 07725 041 601

Email: hello@sunshineandsmiles.org.uk

Hawthorn Family Support Centre (Mencap)

The Vinery Centre, 20 Vinery Terrace, Leeds, LS9 9LU

https://www.leedsmencap.org.uk/how-we-can-help/families-and-siblings/hawthorn-family-support/

Tel: 0113 235 1331

Email: kath.surtees@leedsmencap.org.uk

Bradford Down Syndrome Training and Support Service Ltd

http://www.downsyndromebradford.com/

 

Tel: Wendy Uttley 01274 561 308

Email: office@downsyndromebradford.co.uk

Wakefield and District Down Syndrome Support Group

www.downsyndrome-wakefield.net

Tel: 07814 367 594

Email: info@downsyndrome-wakefield.co.uk

SNAPS (Special Needs and Parent Support)

www.snapsyorkshire.org

Email:dean@snapsyorkshire.org or 07964 847 775 (Penny Field site) jo@snapsyorkshire.org or 07738 287 024 (Broomfield site)

Mobile: 07964 847 775

The Down’s Syndrome Association (DSA) have produced a number of parent information leaflets which can be found on their website here https://www.downs-syndrome.org.uk/about-downs-syndrome/pregnancy-and-baby/  and here https://www.downs-syndrome.org.uk/about-downs-syndrome/lifes-journey/parent-and-family-carers-well-being/

The Down Syndrome Medical Interest Group (DSMIG) UK have a useful information and resource section on their website for further information on health surveillance and health issues – https://www.dsmig.org.uk/

Some families may be entitled to claim certain benefits. Further information is available at https://www.gov.uk/browse/benefits. Your health visitor will be able to support you to look at what is right for you.

Family information

The Family Information Service

https://familyinformation.leeds.gov.uk/

Tel: 0113 247 4386

Leeds SEND Information Advice Support Service

Technorth, 9 Harrogate Road, Chapel Allerton, Leeds, LS7 3NB

https://sendiass.leeds.gov.uk/

 

Helpline: 0113 378 5020 (Mon-Fri 10am to 3pm)

Leeds Local Offer

https://www.leeds.gov.uk/and search for ‘local offer’

Leeds City Council Inclusive Sport Programme

https://active.leeds.gov.uk/classesandactivities/sports then look for the ‘Disability Sports’ section

Customer Contact Centre:

Tel: 0113 378 8001

Email: ActiveLeeds@leeds.gov.uk

Changing Places

https://www.leeds.gov.uk/ and search ‘changing places’

National Resources

Down’s Syndrome Association https://www.downs-syndrome.org.uk/

Down’s Heart Group https://dhg.org.uk/

Down Syndrome Educational Trust https://www.down-syndrome.org/en-gb

Babywalkers leaflet produced by Bliss – the premature baby society https://www.bliss.org.uk/ Search for ‘babywalkers’

Contact a Family https://contact.org.uk/

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